London, Canada, November 18, 2021—Pulse Infoframe and the Loulou Foundation have announced a collaboration to leverage Pulse Infoframe’s novel globally unique identifier (GUID) model to enable linkage of data from... read more →
London, Canada and Tucson, Ariz., U.S. (September 29, 2021) – Critical Path Institute (C-Path) and Pulse Infoframe announced today their collaboration to advance technologies and tools to further rare disease... read more →
Breaking Down Silos to Accelerate Research for Rare Kidney Disease London, Canada; Scottsdale, United States (September 7, 2021)—Alport Syndrome Foundation and Pulse Infoframe are pleased to announce that the advocacy... read more →
https://www.youtube.com/watch?v=Thz9e7zxwpk Patient advocate and CATS Foundation co-founder Daniel Lewi shares his insights on the importance of a patient registry.
https://www.youtube.com/watch?v=s1OvC-Xap-A Patient advocate and CATS Foundation co-founder Daniel Lewi shares his journey as a patient advocate.
August 12, 2021, London, Canada—PIP-UK is joining Rare Central, the rare disease platform powered by Pulse Infoframe, to create the UK Poland Syndrome Community Register. The PIP UK charity will... read more →
https://www.youtube.com/watch?v=mGtwX6CcKHs Drug Repurposing for Rare Diseases 2021, June 15-16. Brought to you by Findacure.
Pulse Infoframe specializes in generating real-world data (RWD) that can be used to create real-world evidence (RWE). In this article, we will discuss how pharma companies can access real-world evidence... read more →
London, Canada; Rhode Island, United States (June 24, 2021) - QualityMetric and Pulse Infoframe announced today their partnership and vision to create the first scientifically validated rare disease instruments across... read more →
https://www.youtube.com/watch?v=vwUBqCN1EP8 What is an international registry, and why is it important?
