https://www.youtube.com/watch?v=EKgieiPGnG0 Patient registries—Does your population need one?
https://www.youtube.com/watch?v=I8SbtXpktH8 Learn about the CDKL5 Registry, International CDKL5 Disorder Database, & Connect CDKL5, and how they complement research goals. Q&A Panel will follow. Panel: Dan Lavery (Loulou Foundation), Helen Leonard... read more →
Front and center with the COVID-19 pandemic era is this question: How can we enable research to move forward while keeping patients who participate in studies and clinical trials safe?... read more →
With so much information whizzing by us these days because of the COVID-19 crisis, and with so many people posting pictures of themselves in #quarantine or #selfisolation, or talking about... read more →
London, Ontario, April 15, 2020: The impact of the pandemic on the mental health of the global population is unclear. For this reason, scientists at Pulse Infoframe are leading an... read more →
The crisis caused by COVID-19 affects different groups of people in different ways. One thing is certain: each of us is being forced to adapt to rapidly new circumstances and... read more →
https://www.youtube.com/watch?v=VXDS0mAOx2U Pulse Infoframe is a real-world evidence, health informatics and analytics company that combines technology and services to create engaging, efficient and sustainable data ecosystems. This video focuses on our... read more →
March 16, 2020 LONDON, UK and LONDON, CANADA Aparito, a company transforming healthcare by unlocking real-world patient data through mobile apps and wearable devices, and Pulse Infoframe, a leading cloud-based... read more →
https://www.youtube.com/watch?v=eYEmLaiVNic Registry Diversification — Building Sustainable Disease Registries to Accelerate Research and Improve Lives
https://www.youtube.com/watch?v=IMIYYUJmNNM Patient registries are centralised databases that collect medical information about patients with a particular condition or group of conditions. Patient registries are often particularly valuable for rare diseases, especially... read more →
