Dr Femida Gwadry-Sridhar is the Founder and CEO of PulseInfoFrame; a company that builds collaborative communities to enable the best value healthcare and cures for cancer and rare diseases. As... read more →
We are excited that Chasing My Cure: A Doctor's Race to Turn Hope Into Action is NOW AVAILABLE everywhere books are sold! The University of Pennsylvania’s Dr. David Fajgenbaum, Pulse... read more →
In July, Pulse Infoframe CEO Dr. Femida Gwadry-Sridhar chaired the 10th Annual Orphan Drugs & Rare Diseases – West Coast Conference in San Francisco and delivered a keynote talk on... read more →
We’re excited to share that Dr. David Fajgenbaum, a friend and collaborator of Pulse InfoFrame and PI of the ACCELERATE registry which is powered by Pulse, is sharing his amazing... read more →
Patient-reported data will help inform research in rare form of eye cancer Immunocore Limited, a leading T cell receptor biotechnology company, and Pulse Infoframe, Inc. (Pulse), a data aggregation and... read more →
Here are a few highlights of our travels from the past few months. Dr. Durhane Wong-Rieger (L), President of the Canadian Organization for Rare Disorders (CORD), and our Dr. Femida... read more →
Several of our clients have celebrated some huge successes this season. Take a look! Simon’s Heart Since 2011, Simon's Heart has advocated for the Sudden Cardiac Arrest Prevention Act. In... read more →
Our staff has grown in recent months as we help more organizations use real world evidence to find effective treatments for rare diseases. Paul Ferraiolo: Chief Innovation Officer Paul brings... read more →
Our newest customers provide further examples of how real world evidence (RWE) in healthcare is used. Uveal Melanoma Registry This is the first-of-its-kind, global registry to use real RWE in... read more →
by Joe Ternullo Patients as Partners conferences are the only conferences in the US and Europe dedicated to demonstrating how to systematically involve patients throughout the entire drug development life... read more →
