With individual rare diseases affecting such a relatively small proportion of patients globally, capturing effective data to aid with research... read more →
The need for real-world evidence to inform therapies can no longer be denied. Gathering standardized feedback from patients where they... read more →
Front and center with the COVID-19 pandemic era is this question: How can we enable research to move forward while... read more →
With so much information whizzing by us these days because of the COVID-19 crisis, and with so many people posting... read more →
The crisis caused by COVID-19 affects different groups of people in different ways. One thing is certain: each of us... read more →
For Julian Summers, it was a long time coming. For his brother John it was too late: he had passed... read more →
