by Dr. Femida Gwadry-Sridhar The FDA recently released guidance on how to characterize real-world data (RWD). I am really glad they have now explained data standards are important and why... read more →
Pulse Infoframe specializes in generating real-world data (RWD) that can be used to create real-world evidence (RWE). In this article, we will discuss how pharma companies can access real-world evidence... read more →
Like a hockey player to a gaping net, Nina Liu was drawn to the gap in important data that could improve the lives of so many: missing real-world evidence in... read more →
Narcolepsy is a sleep disorder whereby the body cannot properly regulate sleep and alertness. Common characteristics include excessive sleepiness, hallucinations, sleep paralysis, and sometimes partial or total loss of muscle... read more →
At Pulse Infoframe, we have a sneaking suspicion about Dr. Femida Gwadry-Sridhar, our founder and CEO. We believe her favorite childhood game was Connect the Dots. Why? Because of her... read more →
To generate evidence, we need to understand the types of data that are important and available within the patient’s “real world”. The generation of useful disease specific data requires an... read more →
When setting up a disease registry, there are several things to consider, such as choosing your registry type (for example, patient registry, natural history or clinical), engaging participants, and financing... read more →
Historically, research into rare diseases has been siloed and lacking in standardization. This has resulted in meaning overlaps, wasted time, and wasted resources, all of which delay potential breakthroughs for... read more →
When you invest in a patient registry, you want it to remain viable for many years and ensure that your data can contribute to research and treatment development. Here are... read more →
When exploring the idea of establishing a registry for your organization, the prospect can be daunting and the options, seemingly endless. There are a range of options available, costing from... read more →
