London On. July 9th – The Timothy Syndrome Alliance (TSA) and Pulse Infoframe will present a new poster at the Genomics England Research Summit today in London, UK. The... read more →
London On. –May 1st 2024- Pulse Infoframe, an industry leader in global patient registries and real-world evidence generation has announced today that their abstract for a poster presentation has been... read more →
London, Canada, April 15th, 2024— Pulse Infoframe, is delighted to announce the establishment of its Scientific Advisory Board (SAB). This distinguished board will further bolster and refine Pulse Infoframe’s... read more →
DUBLIN, July 17, 2023 – Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in CURVE-PD (Clinical Understanding through Real-world data to Validate Effectiveness of treatments... read more →
DUBLIN, June 26, 2023 /PRNewswire/ -- Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in GRASP-DC (Generating Real-world Ambispective data to Study Participant Treatment... read more →
Organizations Focused on Kidney Research Now Have Access to Single, Compliant Platform to Accelerate Discovery of Lifesaving Treatments for Kidney Community March 1, 2023, London, Ontario, Canada—Pulse Infoframe is expanding... read more →
PAB Members Have Both Experience in Healthcare and Patient Advocacy October 27, 2022, London, Ontario, Canada—To enhance the patient voice in real-world studies, Pulse Infoframe, a company that specializes in... read more →
Remote Participation Model Allows People to Enroll from Almost Anywhere in the World August 8th 2022, London, Ontario, Canada—Children with pediatric narcolepsy and their caregivers can now take part in a... read more →
Shattering Rare Disease Registry Recruitment Targets with PIP-UK Real-world data from registries and other real-world evidence sources remain a fertile ground of opportunity for advocacy groups and biopharma companies to... read more →
Research to focus on gene at “heart” of Timothy Syndrome March 24 , 2022, London, Canada—Timothy Syndrome Alliance (TSA) is creating a patient registry for the CACNA1C gene, which encodes... read more →
