We Do Data Right.
Launching BIRT — The BHD Syndrome International Registry
Mar 15

Launching BIRT — The BHD Syndrome International Registry

The Myrovlytis Trust is creating a patient registry for Birt-Hogg-Dubé Syndrome (BHD) to better understand the epidemiology of the disease, its prevalence, and the disease trajectory. Their hope is to improve the quality of life for this community and ultimately develop treatments for BHD. For more information about the Birt-Hogg-Dubé International Registry and The Myrovlytis Trust, visit bhdsyndrome.org. 

The Myrovlytis Trust and the BHD Foundation, in association with Pulse Infoframe, are launching BIRT, the first international registry devoted to Birt-Hogg-Dubé syndrome.
The Myrovlytis Trust and the BHD Foundation hope that the new BHD Syndrome International Registry can help researchers discover more about Birt-Hogg-Dubé Syndrome.