https://www.youtube.com/watch?v=KjYrIVdFG0c Dr. Femida Gwadry-Sridhar, Founder and CEO of Pulse Infoframe, discussed how to improve patient engagement during studies while collecting standardized, regulatory-grade data.
May
27
Apr
21
Like a hockey player to a gaping net, Nina Liu was drawn to the gap in important data that could improve the lives of so many: missing real-world evidence in chronic conditions, cancer, and rare disease. As the Director of Clinical Product Management at Pulse Infoframe since 2019, Nina is... read more →
Mar
23
Pulse Infoframe & Quinten Health Partner to Advance Precision Medicine Through Real-World Evidence Generation London, Canada; Paris, France (March 23, 2021) — As precision medicine increasingly becomes a reality, there is a need for advancements in generating real-world evidence to drive future care models and novel treatment options. Through a... read more →
Mar
01
Supporting third-party data ingestion, embedded analytics, and consented data access to life sciences, providers, and advocacy organizations London, Canada (March 1, 2021) — Pulse Infoframe Inc., a leader in real-world data and evidence, announces the arrival of healthie™ 2.0, its next-generation evidence platform. Benefiting from feedback received from patients, medical researchers and pharma stakeholders, healthie™ 2.0 offers many advances in data structuring and opportunities to leverage multiple data sources for analyses and research within the same platform. Pulse Infoframe’s first-generation platform, healthie™ 1.0, supported collaborations that... read more →
Feb
10
Launching a rare disease patient registry often requires patient advocacy groups to design a registry themselves or pay for an expensive customized solution. With the launch of Rare Central™, Pulse Infoframe offers patient advocacy groups an on-ramp to collecting real-world data, including natural history data, disease-specific data, and patient-reported outcomes.... read more →
Jan
13
Narcolepsy is a sleep disorder whereby the body cannot properly regulate sleep and alertness. Common characteristics include excessive sleepiness, hallucinations, sleep paralysis, and sometimes partial or total loss of muscle control. People who have narcolepsy feel very sleepy during the day and can also fall asleep during normal activities, no... read more →
Jan
07
At Pulse Infoframe, we have a sneaking suspicion about Dr. Femida Gwadry-Sridhar, our founder and CEO. We believe her favorite childhood game was Connect the Dots. Why? Because of her skill at connecting the dots in healthcare data. Of course, the world of healthcare data is disorderly, not numbered and... read more →
Dec
19
To generate evidence, we need to understand the types of data that are important and available within the patient’s “real world”. The generation of useful disease specific data requires an understanding of the relevant information surrounding the patient and their illness to gain a well-rounded view of the cause of... read more →
Dec
07
When setting up a disease registry, there are several things to consider, such as choosing your registry type (for example, patient registry, natural history or clinical), engaging participants, and financing the project. However, you should not overlook how you plan to use the data collected to ensure that your registry... read more →
Nov
12
Historically, research into rare diseases has been siloed and lacking in standardization. This has resulted in meaning overlaps, wasted time, and wasted resources, all of which delay potential breakthroughs for patients. You can ensure the data in your registry actively supports new research, rather than hinders it, by employing a... read more →
