Jun
22
Front and center with the COVID-19 pandemic era is this question: How can we enable research to move forward while keeping patients who participate in studies and clinical trials safe? This requires minimizing exposure to the coronavirus. Continuing Studies and Clinical Trials Remotely These public health concerns have expedited a...
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Apr
30
With so much information whizzing by us these days because of the COVID-19 crisis, and with so many people posting pictures of themselves in #quarantine or #selfisolation, or talking about social distancing and then physical distancing, trying to keep straight what it all means is becoming increasingly difficult and confusing...
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Apr
15
London, Ontario, April 15, 2020: The impact of the pandemic on the mental health of the global population is unclear. For this reason, scientists at Pulse Infoframe are leading an online study to investigate the short-term and long-term impacts of the pandemic on the mental health of individuals and communities....
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Apr
03
The crisis caused by COVID-19 affects different groups of people in different ways. One thing is certain: each of us is being forced to adapt to rapidly new circumstances and adopt new behaviors. For people living with a rare disease—many of them children—this virus makes life even more precarious than...
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Mar
24
https://www.youtube.com/watch?v=VXDS0mAOx2U Pulse Infoframe is a real-world evidence, health informatics and analytics company that combines technology and services to create engaging, efficient and sustainable data ecosystems. This video focuses on our patient registry and portal, just one of the available, cross-compatible modules in the heathie platform.
Mar
16
March 16, 2020 LONDON, UK and LONDON, CANADA Aparito, a company transforming healthcare by unlocking real-world patient data through mobile apps and wearable devices, and Pulse Infoframe, a leading cloud-based healthcare data insights company delivering a holistic solution to foster collaboration and answer complex research, statistical and economical questions have...
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Mar
03
https://www.youtube.com/watch?v=eYEmLaiVNic Registry Diversification — Building Sustainable Disease Registries to Accelerate Research and Improve Lives
Jan
24
https://www.youtube.com/watch?v=IMIYYUJmNNM Patient registries are centralised databases that collect medical information about patients with a particular condition or group of conditions. Patient registries are often particularly valuable for rare diseases, especially international registries as they allow national boundaries to be transcended to capture information about scattered patient populations. This webinar shares...
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Dec
08
Dr Femida Gwadry-Sridhar is the Founder and CEO of PulseInfoFrame; a company that builds collaborative communities to enable the best value healthcare and cures for cancer and rare diseases. As founder and CEO of PulseInfoframe, Femida has an extensive background as a pharmacist, epidemiologist and methodologist with over 25 years...
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Oct
16
We are excited that Chasing My Cure: A Doctor's Race to Turn Hope Into Action is NOW AVAILABLE everywhere books are sold! The University of Pennsylvania’s Dr. David Fajgenbaum, Pulse Infoframe friend and collaborator and principal investigator of the ACCELERATE registry, wrote Chasing My Cure to share lessons learned about...
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