Several of our clients have celebrated some huge successes this season. Take a look!
Simon’s Heart
Since 2011, Simon’s Heart has advocated for the Sudden Cardiac Arrest Prevention Act. In May, Georgia and West Virginia became the 13th and 14th states, respectively, to pass the Sudden Cardiac Arrest Prevention Act, underscoring the power of data to effect change and improve lives.
Orphan Disease Center
On June 6-7, 2019, the Orphan Disease Center (ODC) at the University of Pennsylvania School of Medicine, in partnership with Global Genes, will host the annual RARE Drug Development Symposium, designed to connect, educate, and inspire rare advocates. The Symposium focuses on the drug development process and the role of rare disease advocates.
And a special congratulations to Ashley Winslow, PhD, Senior Director, Portfolio Research and Development at ODC, on the birth of her baby girl!
Bowel Cancer Australia
Hot off the press! Bowel Cancer Australia is a nonprofit advocacy organization focused on supporting patients and increasing public awareness and screening throughout Australia. Its marketing campaign has won a Siren Award for an innovative and engaging public service radio campaign. Bowel cancer is the second largest fatal cancer in Australia.
This story first appeared in our May 2019 newsletter. Get Pulse Infoframe news delivered to your inbox. Email us to sign up today.
